Our Mission is to support families living with a diagnosis of a rare genetic condition, to build lasting positive family memories, strengthen their family relationships, and improve emotional wellbeing and resilience.

Our Vision is a future where a diagnosis of a rare genetic condition will not be a barrier to experiencing everything that life has to offer – most importantly enjoying life experiences and making memories as a family.

What we do

The Sandcastle Trust walks alongside families living with a rare genetic condition to help them build lasting positive family memories, strengthen their family relationships, and improve emotional wellbeing and resilience.

We do this through our four Sandcastle Support Programmes: Sandcastle Memories, Sandcastle Smiles, Sandcastle Connections and our Sandcastle Support Hub.

Through this unique service offering, consisting of bespoke family respite, wrap around fun family engagement activities and peer support, we are able to support families living with a rare genetic condition based on their individual needs from across the UK.